Research Disparities
The following resources listed below - including informational articles, podcasts, educational guides and more - are devoted to the importance of ARO and care without barriers in clinical trials and research.
For even more information, visit HOPA's Time to Talk: Diversity in Clinical Trials awareness campaign page.
Hispanic Americans' Trust in Medical Scientists and Views About the Potential for Researcher Misconduct
"Hispanic adults have broadly positive views of medical scientists, as well as of scientists generally. Yet their views of medical research scientists - and the work they do - are nuanced, with concerns about misconduct and accountability existing alongside positive views of medical scientists as a group."
Charting the Future of Cancer Health Disparities Research
The following link is a position statement from the American Association for Cancer Research, the American Cancer Society, the American Society of Clinical Oncology, and the National Cancer Institute on the future of cancer health disparities.
Advancing Health Equity: A Guide to Language, Narrative, and Concepts
"Designed for physicians and other health care professionals, the Advancing Health Equity: A Guide to Language, Narrative and Concepts provides guidance and promotes a deeper understanding of equity-focused, person-first language and why it matters."
Why Diverse Clinical Trial Participation Matters
"A recent report from the National Academies of Sciences, Engineering, and Medicine (NASEM) brought additional, much-needed attention to this problem and suggested a number of reforms to the clinical research enterprise. But interest and investment in efforts to improve diversity and representativeness in trials are unlikely to be sustained if the goals of diversification aren’t clearly articulated and understood."
Diversity Site Assessment Tool (DSAT)
"Welcome to the Society for Clinical Research Sites (SCRS) Demographic Site Assessment Tool (DSAT). As outlined in the DSAT document, this tool is designed to allow a self-assessment of your capacity for recruiting and meeting the needs of diverse patient populations in clinical trials."
Diversity, Inclusion, and Equity in Clinical Research Toolkit
The following guidance toolkit and user guide from The Multi-Regional Clinical Trials Center of Brigham and Women's Hospital and Harvard offers resources on improving diversity in clinical research.
The State of Cancer Health Disparities in 2022
"The AACR Cancer Disparities Progress Report 2022 aims to increase awareness of the progress in understanding and addressing disparities across the cancer care continuum, and to emphasize the vital importance of cancer health disparities research in saving lives. The report underscores the need for robust, sustained, and predictable annual federal funding increases for the entities that fuel progress against cancer health disparities, in particular, NIH, NCI, and CDC."
Diversity in Cancer Care: Current Challenges and Potential Solutions to Achieving Equity in Clinical Trial Participation
"Efforts to ameliorate these clinical trial inclusion disparities are met with a slew of multifactorial and multilevel challenges. We aim to review these challenges at the patient, clinician, system, and policy levels. We also highlight and propose solutions to inform future efforts to achieve cancer health equity."
